One Egg is an Oeuf

I was given the green light to start driving the Quadcycle on Wednesday. I know that the cyber-attack affected many people, including many radiotherapy, chemotherapy, Consultants’ appointments and operations being cancelled. Fortunately, the cyber-attack didn’t affect me save that the backlog meant that I had a longer wait than usual at the Hospital on Wednesday but that was ok. I’m not going to write a lengthy rant but I can’t understand why anyone would use their IT talents in such a destructive way.

A Little Less Conversation

Graham and I had chosen the novelty of talking to each other Continue reading “One Egg is an Oeuf”

[Ch]e-mo Sabe Started on a Unicycle, is Currently on a Tricycle and Wants to Ride a Hexacycle

On Wednesday, I will be exactly halfway through the six cycles of the chemotherapy planned for me. I see my Oncologist tomorrow for a pre-quad cycle catch-up. Overall, I’ve been feeling a bit tired over the last few days. It’s probably a combination of: sleeplessness (I’ve been struggling to get to sleep and waking up early, which is not ideal for sleeping!); the chemo side effects kicking in; further steroid reduction last Wednesday (as they give one a boost in energy, I surmise that, as one reduces the dose, the boost is reduced too); increased mobility, which means more short walks in an average week; and, of course, general tiredness and fatigue caused by having a brain tumour, brain surgery (twice), radiotherapy and chemotherapy!*

However, I am feeling a lot less tired than I did at this stage when I rode the bicycle. Continue reading “[Ch]e-mo Sabe Started on a Unicycle, is Currently on a Tricycle and Wants to Ride a Hexacycle”

Sleeping the Dream

Women wait longer than men to be diagnosed with brain tumours on average, according to findings The Brain Tumour Charity has called “worrying”. Research by the Charity found that female patients who visit the doctor due to concerns about symptoms are twice as likely as men to wait more than a year to be diagnosed. People from low income families with a household income under £20,000 are more than twice as likely as those with a higher household income to wait a year or more between a visit to a healthcare professional and the diagnosis of a brain tumour.

I finished the tablet-taking part of this second cycle last Sunday. I felt nauseous and had a reduced appetite over the weekend and on Monday but thankfully that subsided on Tuesday. Most days, I’ve been sleeping Continue reading “Sleeping the Dream”

Iron Lion Zion

Golf-ball Sized Tumour Mistaken for Ingrown Toenail

“I woke up one morning and I had no feeling in my leg, it was terrifying… In the end I was told that the ingrown toenail on my right foot was causing the loss of feeling in my right leg and that I should have it removed.”

The Brain Tumour Charity is working tirelessly to increase symptom awareness, not just during Brain Tumour Awareness Month but throughout the year.

The Lion Roars

Leo sailed through an appointment with his Consultant at the RVI this morning Continue reading “Iron Lion Zion”

Chemo Confirmation / Cole’s Miscellany (Part Eleven)

[I felt that I couldn’t publish a blog without saying anything at all about yesterday’s attack in London even though I have nothing to say that hasn’t already been said. Hope those of you in London (and your friends and family) are safe and sound. Take care.]

To mark the end of Brain Tumour Awareness Month, Brain Tumour Research is hoping to make Friday 31 March 2017 “the biggest, boldest and hattiest Wear A Hat Day EVER“. So get your hats out (or borrow one of mine) to join in!

Chemo (Round Two)

On Tuesday, I met with Dr M, my Consultant Oncologist, who asked me how I had found Round One (which I said had gone fine, as it did). She also asked how many seizures I’ve had since the “flurry of seizures”* (Dr M’s term) that I desc Continue reading “Chemo Confirmation / Cole’s Miscellany (Part Eleven)”