Sleeping the Dream

Women wait longer than men to be diagnosed with brain tumours on average, according to findings The Brain Tumour Charity has called “worrying”. Research by the Charity found that female patients who visit the doctor due to concerns about symptoms are twice as likely as men to wait more than a year to be diagnosed. People from low income families with a household income under £20,000 are more than twice as likely as those with a higher household income to wait a year or more between a visit to a healthcare professional and the diagnosis of a brain tumour.

I finished the tablet-taking part of this second cycle last Sunday. I felt nauseous and had a reduced appetite over the weekend and on Monday but thankfully that subsided on Tuesday. Most days, I’ve been sleeping Continue reading “Sleeping the Dream”

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Iron Lion Zion

Golf-ball Sized Tumour Mistaken for Ingrown Toenail

“I woke up one morning and I had no feeling in my leg, it was terrifying… In the end I was told that the ingrown toenail on my right foot was causing the loss of feeling in my right leg and that I should have it removed.”

The Brain Tumour Charity is working tirelessly to increase symptom awareness, not just during Brain Tumour Awareness Month but throughout the year.

The Lion Roars

Leo sailed through an appointment with his Consultant at the RVI this morning Continue reading “Iron Lion Zion”

The “S” Factors

Samantha Dickson died from a brain tumour at the age of 16. Her parents saw the lack of funding for research and support for brain tumours, were duly horrified and set up the Samantha Dickson Brain Tumour Trust in 1996. This Trust merged with two other brain tumour charities in 2013 to become the Brain Tumour Charity, which is now at the forefront of brain tumour research and support for those affected by them. See here to learn more about the charity’s history and achievements. #BTAM

Special Times

Specialising on the Beat?

Earlier in the week, Leo was resisting a nap, showed his displeasure through screaming and got increasingly worked up. Continue reading “The “S” Factors”

The Winner Takes It Small

The Brain Tumour Charity is the leading funder of brain tumour research in the UK, spending over £18.3 million to date on pioneering projects that will help adults and children with brain tumours. It is currently funding 255 researchers at 48 institutions in 12 different nations. See more information here

After 8 seizures in about 20 hours just over a week ago, after which my anti-seizure medication was increased, I have had a relatively good week or so with only a couple of seizures. Continue reading “The Winner Takes It Small”

Awakey Breaky Head: Extended Edition on a “Lord of the Rings” Scale (But With No Talking Trees)

Currently, over 130 different types of ‘high grade’ (cancerous) or ‘low grade’ (non-cancerous) brain tumours are known. The treatment and care plan for each patient depends on the type, size and location of the tumour.

Here is a long-promised post about my “Awake” Craniotomy that went ahead on Halloween. I gave a short sneak preview a long time ago on 3 November but have been remiss in writing the screenplay. It took me less than 24 hours to publish a post detailing my biopsy and it’s taken over a hundred times longer to publish this. My only excuse is that I have been a bit busy since the surgery with: bits and bobs; seizures and sleeping; radiotherapy and recovery; and, chemotherapy and Continue reading “Awakey Breaky Head: Extended Edition on a “Lord of the Rings” Scale (But With No Talking Trees)”

Turn On, Tune In, Cop Out

The Brain Tumour Charity’s research strategy, A Cure Can’t Wait, has the twin goals of doubling survival rates within ten years and halving the harm that brain tumours have on quality of life within five years. 

The Brain Tumour Charity asked a while ago if I would be willing to share my family’s brain tumour stories and last week sent a press release out to coincide with the beginning of Brain Tumour Awareness Month. They arranged two interviews, the first of which was with a journalist from Global News, Continue reading “Turn On, Tune In, Cop Out”