Awakey Breaky Head…(Part Two)

Would you like to start your working week by watching examples of the same type of Hannibal Surgery that I had, as I described in Awakey Breaky Head…?

If so, you’re in the right place! Today I can offer you two links to five videos.

Classical Brain Surgery

There are four videos on Continue reading “Awakey Breaky Head…(Part Two)”

[Ch]e-mo Sabe Started on a Unicycle, is Currently on a Tricycle and Wants to Ride a Hexacycle

On Wednesday, I will be exactly halfway through the six cycles of the chemotherapy planned for me. I see my Oncologist tomorrow for a pre-quad cycle catch-up. Overall, I’ve been feeling a bit tired over the last few days. It’s probably a combination of: sleeplessness (I’ve been struggling to get to sleep and waking up early, which is not ideal for sleeping!); the chemo side effects kicking in; further steroid reduction last Wednesday (as they give one a boost in energy, I surmise that, as one reduces the dose, the boost is reduced too); increased mobility, which means more short walks in an average week; and, of course, general tiredness and fatigue caused by having a brain tumour, brain surgery (twice), radiotherapy and chemotherapy!*

However, I am feeling a lot less tired than I did at this stage when I rode the bicycle. Continue reading “[Ch]e-mo Sabe Started on a Unicycle, is Currently on a Tricycle and Wants to Ride a Hexacycle”

Let Them Eat Cake

After rambling updates Japanese style, the remainder of this post is about some wonderful fundraising by friends and former colleagues for the Brain Tumour Charity. Don’t worry, this is not a sponsorship request, it is a public thank you (whether they like it or not) to those who have raised money recently.

Haiku Updates – Health, Happiness and the Hobbit House

I’m feeling stable,

which might precede a set-back Continue reading “Let Them Eat Cake”

Sleeping the Dream

Women wait longer than men to be diagnosed with brain tumours on average, according to findings The Brain Tumour Charity has called “worrying”. Research by the Charity found that female patients who visit the doctor due to concerns about symptoms are twice as likely as men to wait more than a year to be diagnosed. People from low income families with a household income under £20,000 are more than twice as likely as those with a higher household income to wait a year or more between a visit to a healthcare professional and the diagnosis of a brain tumour.

I finished the tablet-taking part of this second cycle last Sunday. I felt nauseous and had a reduced appetite over the weekend and on Monday but thankfully that subsided on Tuesday. Most days, I’ve been sleeping Continue reading “Sleeping the Dream”

Iron Lion Zion

Golf-ball Sized Tumour Mistaken for Ingrown Toenail

“I woke up one morning and I had no feeling in my leg, it was terrifying… In the end I was told that the ingrown toenail on my right foot was causing the loss of feeling in my right leg and that I should have it removed.”

The Brain Tumour Charity is working tirelessly to increase symptom awareness, not just during Brain Tumour Awareness Month but throughout the year.

The Lion Roars

Leo sailed through an appointment with his Consultant at the RVI this morning Continue reading “Iron Lion Zion”

Chemo Confirmation / Cole’s Miscellany (Part Eleven)

[I felt that I couldn’t publish a blog without saying anything at all about yesterday’s attack in London even though I have nothing to say that hasn’t already been said. Hope those of you in London (and your friends and family) are safe and sound. Take care.]

To mark the end of Brain Tumour Awareness Month, Brain Tumour Research is hoping to make Friday 31 March 2017 “the biggest, boldest and hattiest Wear A Hat Day EVER“. So get your hats out (or borrow one of mine) to join in!

Chemo (Round Two)

On Tuesday, I met with Dr M, my Consultant Oncologist, who asked me how I had found Round One (which I said had gone fine, as it did). She also asked how many seizures I’ve had since the “flurry of seizures”* (Dr M’s term) that I desc Continue reading “Chemo Confirmation / Cole’s Miscellany (Part Eleven)”

The “S” Factors

Samantha Dickson died from a brain tumour at the age of 16. Her parents saw the lack of funding for research and support for brain tumours, were duly horrified and set up the Samantha Dickson Brain Tumour Trust in 1996. This Trust merged with two other brain tumour charities in 2013 to become the Brain Tumour Charity, which is now at the forefront of brain tumour research and support for those affected by them. See here to learn more about the charity’s history and achievements. #BTAM

Special Times

Specialising on the Beat?

Earlier in the week, Leo was resisting a nap, showed his displeasure through screaming and got increasingly worked up. Continue reading “The “S” Factors”