Ministrations and Frustrations

It seems remiss of me not to have given ratings recently for my current abode. The quality of care I receive Chez Rents is simply outstanding. The three live-in carers for me, L and J are truly amazing and I literally don’t know what we’d do without them. Their physical efforts, energy and dedication are something to behold. Continue reading “Ministrations and Frustrations”

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The Grand Old Duke of Jackson

On Thursday or Friday, I received a copy of the letter sent by Dr A (my Consultant Neurologist) to my GP confirming details of the counter-attack against my seizures. The term “Jacksonian March” was used to describe the pattern that my seizures follow, starting from my toes and working their way up to my head. I was quite taken with the term and (naturally) immediately Googled it to find out more.

I had already categorised the different levels of current seizure activity into broad categories of Meizure, Inbetweeizure and Doozie. This week has brought a new type, which I felt didn’t fall into the existing categories. So, as the OCD daughter of an industrial chemist might be expected to do with the discovery of a new element of seizure activity, I’ve categorised them into a Seiziodic Table. Continue reading “The Grand Old Duke of Jackson”

Cole’s Miscellany (Part Nine)

  • Meryl Streep’s speech rocked. Kellyanne Conway’s response did not (unless she misspoke and meant to refer to her paymaster instead):

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  • Perhaps if I had the time and energy, I’d write a book about the impending transfer of power in the States called “From The Audacity of Hope to Mendacity and the Dope”.
  • That reminds me: the first rule of Narcissism Club is that no one else can join. But enough about Trump.
  • I recently came across the phrase “lift while you climb”*. I hope that we all aspire to do this (even if we forget it and/or fail from time to time) but fear that it’s not something that reflects modern life.
  • On a lighter note, the Flash Mob craze passed me by – is it still a thing? Anyway, I recently came across this one, which makes me smile not because I’m a big Black Eyed Peas or Oprah fan but because of the sheer number of people involved, how it started with one girl at the front and Oprah’s obvious excitement at the surprise.
  • My favourite piece of trivia that I’ve learned this week is that one of Newcastle’s many claims to fame is the world’s first electric street lighting, which illuminated Mosley Street from 1879.

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*The full quote from which it derives is by Mary Church Terrell:

And so, lifting as we climb, onward and upward we go, struggling and striving, and hoping that the buds and blossoms of our desires will burst into glorious fruition ere long.

Bring Me (Little Miss) Sunshine

This time four years ago I was in the RVI, having given birth at 4.57am to Jennifer Anne Cole, the most amazing and beautiful little girl I’ve ever given birth to! The first thing I said to her as she was placed immediately on to my chest was “hello baby”.

I had been admitted to the RVI the day before, having been referred to the maternity assessment unit by the community midwife after a regular 38-week appointment. The RVI did various tests and checked my blood pressure regularly. When the results came back, Graham and I were taken into a room and “informed” (in a manner of speaking) by an abrupt doctor, whom we thankfully never saw again, “so you know you’ve got pre-eclampsia, right, and will have to be induced?”. (That is one of the very few negative experiences with NHS staff that I have had (and I’ve had some experiences!).)

Continue reading “Bring Me (Little Miss) Sunshine”

The Midterms

Today’s session marked the half-way point in my radiotherapy schedule: 14 sessions down; 14 sessions to go. I had originally been given a schedule of dates (but no times) listing every working day until 1 February. Yesterday, I realised when looking at my Radio Times schedule that the Psychics at Caltech, Dosometrists and Oncologists had worked out my tailored treatment plan and I’m due to finish on 25 January instead. So this post is a half-time report. Continue reading “The Midterms”

You Cannot Not Be Serious (Part Two)

Some further thoughts on how the Squatter has already been a life-changing event:

  1. We went to Gibside on New Year’s Day in weather conditions that would have been, up until recently, less than ideal for me: short bursts of freezing cold rain; and, an arctic breeze. It was bliss for me to get outside and feel fresh air on my face and I enjoyed feeling cold for the first time in weeks given my recent (and ongoing) overheating problems! That was the icy icing on the cake of kids-watching.
  2. The hair loss has accelerated. To see a status report, including photos, please see Hair Today, Gone Yesterday!
  3. Mr C bought me an iWatch for Christmas, going against my Fiscal Responsibility concerns that I reported in the first post in this sub-series. I’m glad he did, though, because I love it (as he knew I would)! This is the guy who, until recently, used to spend months and sometimes years deliberating over whether he was ready to buy a new pair of jeans/shoes/coat/anything else that he desperately needed!
  4. I know that I’ve mentioned this a few times, but I don’t think I can convey exactly how odd it is that I’m waking up early each day (4am this morning). As I said to a friend on the phone last night, early starts have never been my forte, to which Graham commented: “Rach, starts at any time have never been your forte”. It was a good point, well made and a good example of how things have changed over the last four months!

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