The Cran[ial] Kick

The Headsmart campaign for early diagnosis in children has raised awareness of the specific symptoms of brain tumours to look out for in babies, children and teens. It has helped to reduce the average diagnosis time for children from 13 weeks to 6.5 weeks. The campaign is being relaunched in a bid to reduce this further to 4 weeks.

I missed an opportunity in my previous post to help you visualise the upwards leg- and foot-lift start to seizures that I tried to describe. I am someone who (proudly) knows the meaning of “wax on, wax off” Continue reading “The Cran[ial] Kick”

A Ton of Post[s] but no Telegram from the Queen

This is the hundredth post of this blog.

Today is the 170th day that I have known that the Squatter is inside my head. Therefore, on average, a post has been uploaded every 41 hours or so by me or one of my surrogates. That’s not too shabby a run-rate considering that Continue reading “A Ton of Post[s] but no Telegram from the Queen”

Ministrations and Frustrations

It seems remiss of me not to have given ratings recently for my current abode. The quality of care I receive Chez Rents is simply outstanding. The three live-in carers for me, L and J are truly amazing and I literally don’t know what we’d do without them. Their physical efforts, energy and dedication are something to behold. Continue reading “Ministrations and Frustrations”

Fool of a Sook

If the aim of my last post was to turn each of you into an antipodean sook, then it was a success. It wasn’t my intention but I am pleased to have learnt a new word. (I’m not insinuating that you are all fools with my choice of title, by the way, but I thought my brother would be proud with what I think is the debut LOTR reference on this blog.) Continue reading “Fool of a Sook”

We’re Off To See The Wizard

The photo below was taken earlier today, shortly before I was successfully transferred to Ward 15 here at the RVI. The Rents have been granted some respite (just the two children under 4 to look after for now!):


How ‘Do You Do?

Continue reading “We’re Off To See The Wizard”

Dexamethasone Dichotomy

The effects and side-effects of the dexamethasone (steroids) are both tiring and insomniacal (why is that not a word? It’s been keeping me up at night*). An unusual (and less than ideal) combination.

It reminds me (very loosely) of those rock and roll times when I’ve climbed into bed totally wiped out after working 36 hours straight, hoped for instant relief, and then realised that there is absolutely no way my brain will switch off quickly to find solace in slumber. Yes, with apologies to former colleagues and bosses, I’ve just compared working as a lawyer in London with having a brain tumour! Continue reading “Dexamethasone Dichotomy”