Rainbow Road to Perdition

On Thursday, I was uncharacteristically up and out at the crack of dawn* to go to Jennifer’s school’s Continue reading “Rainbow Road to Perdition”


“If I Waited For Perfection, I Would Never Write a Word”*

I offer belated but brainfelt 70th birthday wishes to the marvellous NHS. It’s an institution of which “we should all be dead proud and without which we would all be dead”!** Did the institution Continue reading ““If I Waited For Perfection, I Would Never Write a Word”*”

‘Roids, Droids and Voids

My seizure-free streak is still going (it’s been about seven weeks now) and I’ve not had any migraines since the random one a few weeks ago.

I was on a “maintenance dose” (2mg) of dexamethasone steroids from being discharged from hospital until I saw Dr Mulvenna last week. She agreed that I could try to wean myself off them Continue reading “‘Roids, Droids and Voids”

I Ate the Golden Chicken First

Like many others yesterday, I was very sad to learn that Tessa Jowell has died from the brain tumour that she was diagnosed with a year ago. She used her prominence as a Lady of the Realm in a tragically short time to campaign successfully for, among other things, funding and greater access for patients to adaptive clinical trials. At the end of her last speech in the House of Lords, she said: “what gives a life meaning is not only how it is lived but how it draws to a close”. By that measure alone, Tessa’s life had bucketloads of meaning.  Continue reading “I Ate the Golden Chicken First”

Going Against the ’Graine (Again)

My last migraine was on 29 August 2016, three days before the Squatter was discovered. I assumed, after my brain tumour diagnosis, that the migraines I’d experienced over the previous five or six months had been caused by the tumour. The first Continue reading “Going Against the ’Graine (Again)”

You Can’t Live Indefinitely Indefinitely

The kids came into hospital to visit me a week gone Sunday. Both of them were excited to see me and each had a good look at my head. G had reminded them in advance that my hair had been cut and I would have a plaster on. The previous week when I had returned from my appointment with Mr H to discuss further surgery, I had shown my Mam the photo of me and Mr H. The kids had wanted to see the photo too so I explained that I was sitting next to my doctor, who was going to take out the tumour in my head that shouldn’t Continue reading “You Can’t Live Indefinitely Indefinitely”