From Eternity to Hair

First, two firsts.

For the first time since at least October, I have worn a symbol of my married status. Although I have lost two and a half stone since Christmas, I still can’t get either my wedding or engagement ring on. Happily, my eternity ring is back on my ring finger: Continue reading “From Eternity to Hair”

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Choppy Waters Still Run Deep

It has been a mixed bag of a week, including some great times with the kids; emotional and physical tiredness; brain fatigue; my worst seizure since early May; a visit from a different wing of Garden Force; and, a warm welcome from our new neighbours.

Storming Start

My big seizure happened last Sunday. I had pushed myself a bit too much (it really doesn’t take much) on Saturday Continue reading “Choppy Waters Still Run Deep”

150 Not Out

No, the title doesn’t refer to my age (although I feel it sometimes!) but this is the 150th post on this blog.

It’s come (coincidentally) in the middle of quite a big week for me and my family: I started the week with the final tablets of my final cycle of chemotherapy; Jennifer “graduated” from nursery yesterday and finishes pre-school tomorrow; and, tomorrow we move into our new home, The Hobbit House. Continue reading “150 Not Out”

Friends [and Enemies] Reunited

After meeting my Brain surgeon on our fifth wedding anniversary (scheduled at exactly the same time that our wedding ceremony had started) and my first surgery being on the anniversary of my Uncle’s death, there’s been a degree of confluence of dates during my “journey” so far. It’s been a while but today is not just a double date, it’s a triple one. It’s the day that I have started my Hexycle (and final cycle) of chemotherapy. It’s also five years since I had my 12-week scan with Jennifer and 103 years since my late and beloved Grandad Jim was born. Grandad Jim was such a special person in my life, he deserves a full post, so I’ll hopefully finish and post that soon. Continue reading “Friends [and Enemies] Reunited”

It’s Moving Day!

Well, almost!

The majority of our furniture from our “old” house is moving into the Hobbit House today. We have to leave a few things behind due to lack of space in the bungalow, including a sofa and Jennifer’s double bed. Jennifer is moving into a much smaller room than her old bedroom. Thankfully, she is beyond excited about her new bedroom, not least because of her chosen colour scheme (pink, purple and “golden” (not “gold”)) and new cabin bed, which includes a slide to come down from the bed! Continue reading “It’s Moving Day!”

A Delayed Post: Better Late than Full of Hate

I’ve been struggling to write a blog post this week. It’s not because there’s nothing much going on and, thankfully, there have been no mishaps or dramas. It’s because I’ve been pre-occupied with writing (in my head) a post about issues that have made me angry whenever I have (rarely) thought about them for most of this year. They bubbled up on Sunday. I did the modern-day equivalent of what Abraham Lincoln did: he wrote letters to people to express his anger and/or disappointment and then threw them away without sending them. I am glad that I decided not to publish a post in haste only to repent at leisure.

Back to our regular programming of updates about my health, happenings and the Hobbit House. Continue reading “A Delayed Post: Better Late than Full of Hate”

Down to Zero

I’ve been weaning off the dexamethasone steroids slowly but surely over the last few months from eight milligrams daily. Today is the first day that I’ve not taken any steroids since the middle of December. For the last three weeks, I’ve been on just half a milligram a day. I hope that the removal of this low dose of steroids from my daily regime will not have any adverse effects. Continue reading “Down to Zero”